They did another 3T-MPMRI (Siemens machine) and it showed a faint area, near the margin, and very close to the down stream sphincter of prostate. My experience at Johns Hopkins was awesome. The James Buchanan Brady Urological Institute, Masks are required inside all of our care facilities, COVID-19 testing locations on Maryland.gov, Precision Medicine Center of Excellence for Prostate Cancer, robotic-assisted radical laparoscopic prostatectomies, The Brady Urological Institute and the Johns Hopkins Kimmel Cancer Center take a, Our urologic surgeons have extensive experience performing, Our surgeons, oncologists and radiologists are also world leaders in prostate cancer research, giving patients access to the latest discoveries and. 4. EVERY DAY, they'd take a low dose X-RAY and low dose CT to align the fiducials and ensure my bladder was full and the bowel was empty. My family physician for years told me that small increases PSA was common so when it went over 4 it didnt bother me and my Dr who was retiring, didnt say anything either. Epub 2018 Mar 28. Though, for the most part the reports seem encouraging.I am curious if anyone has had something similar. This site needs JavaScript to work properly. But if I include the 3+3=6 cores then 4 cores tested positive and that moves me into the basic teal category and no longer a strong candidate for AS. I certainly would - after all, there's a certain brotherhood bond here. He basically said it was possible, but that he did not agree. You know - urinary incontence, erectile dsyfunction, and exhaustion (hormones) are not my cup of tea. One of the problems with second opinions is that insurers may not cover the expense. Maybe lycopene and pomegranate have helped. Hello. And again, most of you tell me time is on my side, so I am comforted in hearing that. * IF ANYONE reading this doesn't believe in the value of MRI first and targeted biopsy next then take note that my systematic biopsy cores showed 0 positive in 8 cores and my MRI guided core samples were 6 for 6 being positive! Learn more: Vaccines, Boosters & Additional Doses | Testing | Patient Care | Visitor Guidelines | Coronavirus. * Size: 1.5 cm When to move from Active Surveillance to Treatment for Prostate Cancer? Johns Hopkins Hospital Prostate Cancer - ProstateProHelp.com PCPs can be a great help to navigate the medical marketplace and provide an unbiased voice of reason when it comes to making hard choices. I am at that critical juncture in which I at least need to formalize a plan, select a doctor/facility to work with, and continue my testing to make sure I have what I think I have. Get directions, important phone numbers, locations and more. An accurate diagnosis is essential to ensure the most effective treatment. Treatment decisions for prostate cancer should not be rushed due to a mistaken belief that immediate treatment is required. You May Like: Sbrt Radiation Therapy Prostate Cancer. Every year I got a PSA and DRE during my annual physical. Another DRE that results in identifying that my prostate is enlarged, but cant find and nodules. :) Thanks! There is no bony or bulky nodal disease in the pelvis Two things you learn here is get a second opinion from Johns Hopkins on biopsy and get treated at Center of Excellence. U.S. News & World Report ranked the institute #7in the country. He spent an hour on the phone reassuring me that I didn't need to rush into anything, and they he'd love to scan me 6-8 weeks after my TRUS Biopsyhave to let the trauma and all the blood leave the prostate for a good image. At this point, I am convinced I made the right treatment choiceOHFOR THOSE THAT DON'T KNOW, THE VA HAS MADE REPRODUCTIVE CANCERS A PRESUMPTIVE CONDITION FOR THOSE THAT SERVED IN MOST OF THE WAR ON TERROR LOCATIONS.Good luck fellas and my prayers are with all of you having to contend with this disease. Even for men with faster growing, more aggressive prostate cancer, taking the time to seek a second opinion should be a priority. Getting a second opinion from us is easy, convenient, and all done remotely. Whether you want expert confirmation, lack understanding or confidence in your treatment plan, have a rare or unusual type of cancer, your cancer isnt responding to current treatment its reassuring to know that you have options through a second opinion. - Perineural invasion is present Utilize your primary care physicians as an un-biased resource to help you get second opinions from a range of specialists. EDI am now 52 and not quite functioning like I did 4+ years ago. I am also not comfortable making a decision based upon 1 genomics test, when my other prior test(s) disagrees and the gleason score disagrees. When I was diagnosed I really thought that I will live only 2 years. John. So the pathologist suggested a second opinion. Abstract Context: In men who develop an elevated serum prostate-specific antigen level (PSA) after having undergone a radical prostatectomy, the natural history of progression to distant metastases and death due to prostate cancer is unknown. 4. Tumor Quantifications: The researchers also found that patients who obtained second opinions because they wanted more information, were seeking the best doctor, or had been encouraged to do so by family or friends were more likely to undergo surgery. prostate cancer; quality of health care; second opinion; specialists; treatment. Using an Ellipsoid Volume the dimensions would give you a volume of 20.44. Its in your best interest to ask for another look at a cancer diagnosisIf youve recently been diagnosed with cancer, its wise to ask for a second opinion on your pathology specimen.Johns Hopkins researchers with the Urological Pathology Consult Division, led by Jonathan Epstein, M.D., first reported on biopsy errors a decade ago, when they found a margin of error in prostate cancer diagnoses large enough to give them pause. Based on the results, our experts can provide you with an individualized treatment plan before you leave. I retested in January 2019 and scored 4.20. Second Opinions An accurate diagnosis is essential to ensure that the correct and most effective treatment is given. Generally, the symptoms can stabilize over time. Conflicting Prostate Biopsy OpinionsWhat to Do? You May Like: Prostate Radiation Treatment Side Effects. lesion. - Follow-Up Score (PRECISE) for this lesion = Stable MRI appearance: no new focal/diffuse lesions. Because every patient is different, there are several ways to approach prostate cancer treatment. Get a Second Opinion What can a second opinion tell me? By taking the extra time to seek a second opinion, you have a better chance at finding the most up-to-date approach and an experienced doctor. 10. Seminal vesicles and other margins are negative for tumor. Notice of Privacy Practices(Patients & Health Plan Members). A new study by researchers at the Johns Hopkins University has found that second opinions did not change treatment choice among men diagnosed with low-risk prostate cancer. Two 1cc tumors, gleason score 3+4 each, one in each lobe. -------------------------------------------------------- The lesion also shows focal increased permeability. 2. Anyone else encounter something like this? I had the MRI in April 2021 and it showed a PI-RADS 4 lesion. There is no extraprostatic extension. We specialize in minimally invasive treatments for prostate cancer such as: We place a high priority on sparing the nerves and tissue around the prostate whenever possible. He adds that second opinions also can provide insight into topics like clinical genetics and family risk or issues related to complementary or integrative medicine approaches to manage symptoms. Find more COVID-19 testing locations on Maryland.gov. I then had the PHI test which showed PSA 8.70 and overall PHI 125.9. focal peripheral zone lesions. Expert review of your case by a Cleveland Clinic specialist. The PubMed wordmark and PubMed logo are registered trademarks of the U.S. Department of Health and Human Services (HHS). Want confirmation about a diagnosis or treatment. Of these, 40% obtained second opinions, most commonly because they wanted more information about their cancer (50.8%) and wanted to be seen by the best doctor (46.3%). prostate volume). The Stanford Medicine Online Second Opinion program offers you easy access to our world-class doctors. 3. Confirm biopsy and imaging results with centers of excellence before making any final decisions. Family history of prostate cancer. Being in Wisconsin, my insurance gives me the option of two hospitals to manage me. I have had a second opinion from Johns Hopkins that confirmed the initial pathology of gleason 3+4. Which Patients Report That Their Urologists Advised Them to Forgo Initial Treatment for Prostate Cancer? Research was mixed on PINS, but in those days, many doctors saw them as likely to develop into cancer. In order to receive appropriate treatment, patients must understand the treatment options that are available. * Extracapsular extension: Possible involvement of the anterior Your current doctor will frequently suggest a second opinion, if only to confirm the recommended course of action. Benign fibromuscular stroma; no prostatic glands are identified Overall my PSA is between 4 and 10. Getting a second opinion can sometimes lead to a complete change in diagnosis in non-cancerous growths, inflammatory disorders, infections, cancer and other conditions. Obviously the Covid 19 issue is playing a part in all of our decisions. If they have an enlarged colon, their physician can perform a TURP procedure. 4. Include Your Primary Care Physician as Member of Your Treatment Team. Your doctor is not a specialist in your type of . My only concerned was heavy metal poisoning and didn't know how long AS would be beneficial since I was starting at a young age. First of all we would like to emphasize that the health of our employees, our patients and their relatives is our first priority. LESION 2 Eager to hear what everyone thinks or has anything they see in the report I wouldn't have thought of. In those cases, patients are tremendously grateful for having received the advice and encouragement to get a second opinion, Dr. Matasar adds. Both of which are normal volumes, the Bullet Volume is considered more precise in prostates smaller than 55ml. This puts PCPs in a unique position to impact the treatment decisionif they only refer to urologists and not to radiation oncologists or medical oncologistssurgery is a likely treatment outcome. Video consultation and written report from your expert. It can be caused by many factors, including infection and inflammation. Laparoscopic prostatectomy: The prostate is removed with a miniature telescopic instrument, which allows for a quicker recovery, Robotic surgery: This breakthrough technology, which often is used for prostatectomy surgery, requires only a few small incisions. Time moves fast when dealing with cancer, but Doctors dont. After a little experimenting I have been able to achieve a partial erection. I guess TWO national centers of excellence are better than one? In the United States, studies estimate 72 new cases of PN for every 100,000 people between the ages of 18 and 64 years old. - Benign prostatic tissue A 1.4 cm lesion in the left, apex, anterior transition zone demonstrates conflicting T2 and DWI characteristics for PI-RADS classification - an indeterminate lesion. I could not get a definitive answer from them on how much, how many cells, or any information. Results: -------------------------------------------------------- You receive a secure, private online consultation without leaving home. Prior to the results, the oncologist said that the literature shows that a 3+4=7 with less than 5% pattern 4 behaves just like a 3+3=6 and basically is an indolent tumor. A PSA test at time of biopsy revealed my PSA had risen to 6.5. Shore ND, Karsh L, Gomella LG, Keane TE, Concepcion RS, Crawford ED. Last year, Epsteins lab reviewed the pathology reports of 30,000 cases in which patients requested second opinions.Netto says patients should be proactive in requesting that doctors take another look.A second opinion can reverse the diagnosis in up to 5 percent of cases for some types of cancers, he says, like those of the breast and pancreas.Diagnosis Errors by the Numbers. In addition to providing a better understanding of your diagnosis, a second opinion can also shed new light on treatment options and give you confidence in how to proceed with your care. Disclaimer. We had the 3T MRI (no coil) and MRI guided biopsy at Sperling in NY, and then had a 2nd Opinion done by Johns Hopkins. Only one core was diagnosed with a small amount of 3+3 (it was one of the three targeted cores). In those cases, patients are tremendously grateful for having received the advice and encouragement to get a second opinion, Dr. Matasar adds. I was confident I was making the right decision. notable articles of 2016 - Johns Hopkins Bloomberg School of Cancer vaccines.For a long time, the promise of cancer vaccines that would protect healthy people at high risk of cancer has only dangled in front of researchers. MONDAY, Nov. 7, 2016 Second opinions have little impact on prostate cancer patients treatment decisions, new research suggests. Seeking second opinions is becoming standard practice, and it is mandatory at Johns Hopkins. 4 Get a Second Opinion Dr. Jonathan Epstein explains the benefits of getting a pathology second opinion It is OK to be scared. Immediate means 6 weeks just to see his NP. I find that when I'm trapped in the cockpit not able to use the bathroom for a long time is when I experience that most. Treatment Advice: Sloans radiation oncologist says radiation treatment will likely be the same whichever pathologist report prevails, but may add hormone therapy for about 2 months. IMPRESSION: Second opinions are a common practice in any area of medicine that is complex and that has multiple treatment options available. PROSTATE ADDITIONAL FINDINGS: Benign prostatic lesion. I made the appointments. advising or treating it. Will these places of excellence consider me, or am I bound to my regular doctor for insurance purposes? Im immediately referred to Urologist. Breast cancer.A new study suggests surgery may not always be necessary for all breast cancer patients. Dr. Nour is 100% sure that nothing has spread. Race and ethnicity. Extraprostatic extension: negative But I've had trouble getting Dr. Chang's office to provide any patient referrals. * Gleason Score: 3+4 (4 of 6 specimens), 14 specimens taken Netto points to prostate cancer as an example: If your diagnosis changes from a higher grade to a lower grade cancer, it could mean having the option to avoid radical treatment.Seeking second opinions is becoming standard practice, and it is mandatory at Johns Hopkins. )As for side effectsI occasionally have some urgency/hesitancy having to pee. It was easy. How much is the fee for an opinion of my recent MRI? MRI June 2017 again at SMIL. have no symptoms, and yet you have cancer? Hello everyone. Prostatic Adenocarcinoma Thanks for considering. 8: Prostate, left lateral base More medical freakouts. * Extracapsular extension: None. 1. * Seminal vesicle invasion: None. Some men may have an enlarged prostate but not notice it. The majority had lower risk tumors and clinical staging of 1 40% sought second opinions with about half having more than one reason Men seeking second opinions tended to be younger and better educated citing the need for more information as their reason.
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